“Invisible Patients” and the COVID Pandemic

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With thanks to advocate and guest blogger, Karen Leitson. Find Karen’s advocacy profile here: Personalized Healthcare Advocate Do you or does someone in your family have an unattended medical condition or illness that might be taking a back seat to the coronavirus public health crisis? There is never a “good time” to be sick or…

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When Your Provider Says, “It’s All in Your Head”

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In a recent conversation with Annette, a young woman who has MS (multiple sclerosis), she described to me the first time she went for a drug infusion which had been prescribed by her neurologist. She arrived for the session using her walker, barely able to keep her balance. Exhausted, she was finally able to get…

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Preventing a Deadly Outcome from a Visit to the Doctor

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Today I’m sharing an experience with you in hopes of preventing something we do but don’t think about; something which can be dangerous. At a recent doctor appointment, I found two people in the waiting room just hacking away, coughing up a storm, and very likely infecting others. They were together, and there for only…

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Ac-cen-tu-ate – the Negative?

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It’s time to take a trip with the Way-Back Machine to a song many of us heard when we were kids – because our parents played it on the radio or record player. We all sang along! With lyrics by Johnny Mercer, and sung by Ella Fitzgerald (that’s Ella in the photo above), the song…

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Black Box Warnings May Save Your Life

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This often comes as a major surprise for patients: that when a prescription drug is known to be effective, and is approved by the FDA for some patients, that doesn’t mean it’s effective and safe for all patients. It’s true that some people may be allergic, or the drug might have been prescribed to treat…

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OK, But What’s the Question?

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In my previous life as a speaker and writer on patient empowerment issues, I received email, even postal mail (meaning, yes, someone paid for a stamp!) from patients who were being challenged in some way by the healthcare system. Sometimes I would hear from 8 or 10 people in a week, 25, 30 or more…

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